Someone to Watch Over Me

The two biggest things that happened last week were the Supreme Court’s upholding of the Obama health care plan and the passing of Nora Ephron.  So much has been written about both, that I don’t feel I have anything to add to the eloquence already expressed by so many others, though health care and loss are ever-present mid-life concerns.

Amidst the hubbub and emotions of a difficult weekend and week beginning, in which our family had a monumental decision to make, I received a quiet email from F, the father of my childhood friend C.  Entitled “C needs your help,” he told me that C’s mother R, who has been battling cancer for years, had been brought home from the hospital for the last time and was beginning hospice care.

C and I grew up together in a smallish town, where everyone knew everyone else and we all knew each other’s parents pretty well.

C and my mother had a special bond.  C had weathered an unusual number of blows for a teenager — the death of her high school boyfriend from cancer and a chronic and elusive auto-immune disorder that confounded doctors and would strike without warning.  After I left to spend my senior year of high school in France, as C dealt with the havoc the disease and its medication were wreaking on her body, my mother would take her to explore the growing number of ethnic restaurants in the area. When I traveled to Florida to bring my cancer-riddled mother home with me to Seattle, C came down from New Jersey to say a last goodbye.

My relationship with C’s mother and father was less intimate, but no less constant.  Snippets of memories have surfaced. I remember the Kiss posters in C’s bedroom, as we plotted how to sneak past her mother to go to the midnight showing of the Rocky Horror Picture Show.

I still remember the exact placement of the table and chairs in C’s kitchen, where I would sit and tell her mother stories about France, while she played with her little dog, Muffy. I marveled at the ease with which C’s mother slipped into Italian whenever we visited her immigrant parents, and mostly I remember her faith.  As C’s eyesight waxed and waned because of her disease, her mother would light candles and pray to Saint Lucy, the patron saint of the blind.

Though I didn’t see them again after I reached my mid-twenties, C’s parents remained my cheerleaders from afar. They always asked about me, my mother said, adding that they were always proud of what I was doing.

When my mother was dying, C’s father, who by that time had been dealing with his own wife’s cancer for a few years, sent me encouraging words of wisdom.  I hope I’ve adequately expressed to him how much his support meant to me.

When you lose your mother, you lose the one person who keeps her eye on you, no matter how old you get, no matter how independent you seem. My mother never fully recovered from the loss of her mother and, as she lay dying, it was her mother she called out to.

I was missing my mother last weekend, as our family grappled with our decision, knowing that she alone would understand what I was wrestling with.  “What do you think she would have said to you,” asked a friend, when I told her that my mother and I had once had to make a similar decision.  I thought about it.  “She would have laughed and said, ‘Now do you understand how hard it was for me?'”

My daughters are blessed with an inner circle of mothers.  We celebrate their achievements and we provide counsel and support, when needed. My mother used to joke about being “Mother in the Dark,” that she was often the last to know what was going on with me.  But when you have a circle of mothers, there’s always someone to watch over you.

For Mother’s Day this year, my daughters and their friends filmed a tribute to all of us moms, which included an awards ceremony.  Among the mom honors they bestowed were: best dresser-upper, best with no make-up and all that jazz, best advice, best garden, best redhead, best cowgirl and best chef (yes, that was me, but when asked what their favorite dish of mine was, my kids were hard-pressed to come up with their answer:  pancakes.).

Just as I do with my own daughters, I like to imagine what these girls will be when they grow up.  I know I will always be their cheerleader, even from afar.

Shortly before my mother died, I received a call from one of my brother’s childhood friends, whom I hadn’t seen for more than forty years.  Until he moved away, his family lived in a house behind ours and he and my brother bounced back and forth between houses every day, backdoors slamming with every arrival and departure.

“I was at your house when we got the news that President Kennedy was assassinated,” he told me.  “Your mother brought us together to watch the news and explained what was happening.” For him, my mother was an inextricable part of history.

As we enter our fifties, more and more of my contemporaries are losing their mothers. Though I often get the news via Facebook and sometimes I did not know these women well, I still remember them:  the mother with the gentle eyes, the one who showed how beautiful a woman can look when she’s prematurely gray, the one who drank endless cups of coffee with my mother.

Thank you, R, for being an inextricable part of my history and for being a member of my inner circle of mothers.

With much love to R, C, F and your family.

Depending on your vintage, Nora Ephron was like a friend, sister or mother/mentor and the way in which she shared the experiences of being a woman was beneficial to so many.  Here’s Lena Dunham’s take on Nora from the New Yorker:

When Life Gives You Lemons…

One of my “day jobs” is education reporter, a role I fell into by accident.  As the mother of two school-age kids, I spend a lot of time thinking, talking and yes, complaining about public education (Jeff can attest to this.  In addition to boring people at parties with talk of fish oil, don’t get me started on the middle school math curriculum).  Because it matters so much to me, I’ve decided that in addition to volunteering in the schools, the best way for me to be part of the solution, instead of merely bitching about the problems, is to write objectively about efforts to improve our imperiled public education system and the people who are working hard to make a difference.

Some have called this the civil rights struggle of our time.

When my mother was dying and I was fighting to make sense of her convoluted Medicare coverage, I became an impassioned advocate for Medicare reform and especially for people of my generation — the sandwich generation — to educate ourselves about the harsh realities of elder care.

If all politics is local, maybe all activism is first and foremost located in our hearts.

Two years ago, I sat in a Starbucks at the Plantation Towne Square shopping mall in Florida with my childhood acquaintance and neighbor Beth.  I hadn’t seen Beth since high school, nearly thirty years before, and had only heard snippets about her life from my mother, who was the human embodiment of a social networking site long before Mark Zuckerberg’s birth, able to provide a status update on pretty much anybody from our hometown.

My mother came to visit me after the birth of my second child bearing Table Toppers, the disposable stick-on placemats that she told me Beth, a lawyer and now mother of three, had invented so that mothers trying to feed their toddlers in public places didn’t have to fret about germs.

To be honest, though I’d always liked Beth, I wasn’t interested in hearing about her innovation and applauding her entrepreneurial spirit.  I was in the full throes of an identity crisis that had stemmed from leaving my prestigious international career to be a stay-at-home mother.  Unlike Beth, I hadn’t crafted a creative new identity that merged my professional skills with my new role as parent. I didn’t want to be reminded that there were other women who, after giving birth, had managed to find fulfilling ways to blend career and family.

I came to Florida to care for my mother, who was scheduled for some outpatient surgery. But when I got there, her condition was much worse than I expected.  Our relationship, which had been strained over the years, was awkward, and so to make her feel better and to pass the time, I let her tell me about people we knew in common, including Beth, who lived nearby.  There had been a tragedy, my mother said.  Beth’s oldest son had contracted leukemia at age 11 and hadn’t survived.

I think it was more than cabin fever that led me to break free of my mother and arrange to meet Beth for coffee.

We sat across from each other and commented on how much we both resembled our mothers.  Beth’s chipper high school class president demeanor now had a careworn veneer, but I noticed she also had her mother’s softness and warm, quiet eyes — qualities I had always admired.

We caught each other up on our lives and the people we knew in common, and then we talked, mother-to-mother, about the unspeakable loss she had suffered.  It wasn’t the cancer that had killed Ian, Beth explained, it was the treatment.  Ian had been diagnosed with T-Cell Acute Lymphoblastic Leukemia (ALL) , a form of cancer that can have a 75-80% recovery rate. But his immune system had been so compromised by the toxic cancer treatment, that, though cancer-free at the time, he was unable to survive the meningitis he had contracted while the “cure” was underway.

Along with frustration over the futility of Ian’s death, Beth and her husband Brad were haunted by Ian’s own feelings about his treatment, which had been painful, isolating and humiliating.  Ian often asked why the “cure” had to hurt so much.

“After Ian died, I felt like I was going through the motions as a parent,” Beth admitted.  “Before his death I had thrown myself into parenting, yet I hadn’t been able to prevent something terrible from happening or been able to shield Ian from pain.  Afterwards, it was hard to get excited about birthday parties and school events for my other two sons.”

But Beth is a more than a turkey-maker, she’s a lemonade-maker. She and her family threw themselves into another innovative, entrepreneurial project — the creation of the I Care I Cure Childhood Cancer Foundation, which raises awareness and money to fund gentler treatments for childhood cancer. To date, the foundation and its partners have raised hundreds of thousands of dollars for cutting-edge, targeted therapies for pediatric cancer.

In addition to its ongoing fundraising, the Florida-based foundation hosts a 5K run and family fun day, so that activism can be a family affair. The fifth annual event will be held on February 12.  There is also a network of I Care I Cure Service Clubs for kids across the country, to share Ian’s commitment to community service with his peers, and new efforts to develop teen service learning projects.  You can learn more about these opportunities on the foundation’s website and/or “like” it on Facebook.

Three months after Beth and I met for coffee, my mother died and a year after that, Beth lost her mother. We live on opposite sides of the country and probably won’t ever see each other again.  Since I don’t have my mother to keep me up-to-date, I’ll have to rely on Facebook to follow Beth’s activities.

There’s a saying that books broaden your perspective because they enable you to lead a thousand lives different than your own. The same can be true of your encounters with other people.  I’m grateful for what I learned from my mid-life reacquaintance with Beth, just as I’m grateful every time I get to interview someone for an article and learn what motivates them.  We can’t always and don’t always want to walk a mile in someone else’s shoes.  But we can listen to them share their experiences.

I’ve had a recent bump in readership and subscribers and I want to thank you all. Through this blog I have reconnected with old friends and have made new ones too.  One such person is Ken Rivard, who with his wife Jody Adams, writes the wonderful food blog The Garum Factory.  During my musings about the feasibility of mid-life activism, Ken, who I think of as a wise older brother, commented, “I think the hardest thing, the older you get, is to shake yourself out of the habitual rut of your own life, your own perceptions, etc. and remember when the world was wide open.”         .    

When life gives you lemons, you make lemonade.  When the situation is not so drastic, say on a gray weekend morning when you are waiting for snow, do yourself a favor and make these Lemon-Bay Scones with Currants, courtesy of the Garum Factory.  When you look at the recipe, you might initially be daunted by the effort involved in making and freezing bay leaf and Meyer Lemon-infused brown butter.  Don’t be.  It sounds harder and more time-consuming than it actually is.  And, like activism, once you set your mind to it, you’ll be glad you did.

When Caring for Your Aging Parents Takes You by Surprise

from psychologytoday.com

You may have seen the recent New York Times op-ed piece by Jane Gross entitled “How Medicare Fails the Elderly.”

Though today I intended to write a chipper little blog entry entitled Apple Cakes I Have Known and Loved, reading Gross’s important expose on what she calls “the dirty little secret of health care” — that Medicare does not pay for what most patients (and their families) need and want — reminded me that mid-life is not all soccer games, jack-o-lanterns and apple desserts and that the reason I started this blog was to explore the good, the bad and the ugly aspects of this unique life stage.

They call us the “sandwich generation” for a reason.

Whether you realize it or not, eventually you will have to deal with some aspect of caring for your aging parents.  And it may happen sooner than you expected.

Here’s an excerpt from a piece entitled Hero Sandwich that appeared in a previous incarnation of this blog:

On some level I always knew this day would come, though I hoped to avoid it. But now, staring me in the face is this: my mother, alone and destitute, has cancer. And it’s fallen to me, three thousand miles away, to support her, arranging for her treatment, housing, home health care support and emotional support. In the week since we’ve had the news, cancer has become an almost full-time job, piled on top of my responsibilities as a mother with a part-time job and a life full of commitments. 

They say you don’t know what you don’t know. Little did I know that attempting to figure out her health care coverage would cause me to become unglued. Little did I know that every day, I would move one step forward and two steps back, yet still make time to bake birthday cakes and cupcakes for my two daughters, whose birthdays fell during Week One of cancer, and for whom I wanted to keep things as normal as possible. Now, facing insomnia after a particularly frustrating day, I worry that my youngest daughter, who has been suspiciously scratching her head for weeks, is harboring a nest of lice in her thick, red, curly hair. Lice (and cancer) is what happens when you’re busy making other plans. 

My mother dreads the nights, but I dread the days. The endless to-do list that is not do-able at all because of incorrect information, insurance loopholes and the sheer overwhelmingness of it all. The constant phone calls. And somewhere, buried beneath all that is the emotional toll of the news on my mother, me, my kids. It sneaks up on me, but frankly, I don’t have time to deal with it.

I wrote that nearly two years ago, when I undertook the most difficult challenge of my life – navigating my mother from life to death.  This involved bringing her from Florida to Seattle, where I hoped she could receive cancer treatment, only to discover when she got here that it was too late. The move necessitated changing her Medicare Part “D” insurance (just for kicks, ask your parents to explain their Medicare Part D coverage. Want to really have fun? Ask them to explain the “donut hole.”), which required scores of phone calls to Medicare, as well as to her old and new supplemental insurance companies.  Though I was literally fighting for her life (she could not see a doctor until the insurance changes were finalized), each phone call was like something out of Kafka.

The person at the other end of the line (who would only provide a first name) claimed to know nothing about what had supposedly been done during the previous ten phone calls.  Attempts to trace those other first-name-only customer service representatives, who had promised to take care of things, were fruitless.

During many sleepless nights, I sought comfort from the New York Times blog “The New Old Age,” which was established by Jane Gross, and has continued under Times writer Paula Span. Thanks to them (who I came to think of as trusted older sisters), their guest bloggers, and the countless readers who wrote in with questions and also advice, I learned what questions I should ask and discovered many valuable resources I hadn’t known about.  Most importantly, I learned I wasn’t alone.

Jane Gross recently published A Bittersweet Season: Caring for our Aging Parents –and Ourselves, which is both her personal story of caring for her mother and an enlightening depiction of how Medicare really works.

Paula Span describes her 2009 book When the Time Comes: Families with Aging Parents Share Their Struggles and Solutions as “a support group in print.”

Even if you don’t think you need to yet, I urge you to talk to your parents about their financial situation, their wills and their insurance coverage (including long-term care insurance)   Make sure they have given someone power of attorney and have written directives for the disposition of their remains. Pay attention to the proposed Medicare-related changes in the ongoing health care debate.

Because when the time comes, it will be bittersweet, and you will want to be prepared.